This afternoon my parents were able to meet with the neurosurgeon and go over the MRI from yesterday. He pointed out three things that were in question and gave them the worst possible scenario of each.
1. Fluids have begun leaking from her ear again and this is because of a hole in one of the bones behind the ear. He is going to give it a few days to see if it will heal on it's own. If not he will do a small procedure to put a draining tube in able to try to help it heal. If it has not healed within 10 days of this procedure, he will have to do surgery and put a tube from the hole, down her back to drain the fluids. She would have to keep this tube for the rest of her life.
2. He told them that there is no question that she should have her vision back! {Yay! Our Callie will see!} The worst case here is that she may have blurry vision and have hard time focusing. These things can be helped.
3. The pituitary gland was damaged from either the impact of the vehicle or the stroke she suffered immediately after. This has caused problems with her kidneys which prevents her from controlling her urination. They have kept her on hormones to control this problem. If the damage does not heal then she will have to be on the hormones for the rest of her life. For her age now it is a powder that would be blown in her nose. Once she is older it would be more like an asthma inhaler.
All of these things are things that can easily be dealt with. And again, it is still possible for the damage to heal completely!
The doctors have warned of other problems, such as a high risk of meningitis which if contracted could be fatal. So they are taking extra precautions to ensure she does not become infected. While none of the doctors will clear her of a risk of death, our outlook on her condition is that she will survive. My mom said one of her doctors constantly refers to her as "a waking child". This could take time to come about but we all have faith that it will. I am in such awe at what a miracle this has turned to be! I can't help but thank my Heavenly Father for everything!
Are there really tragedies? I don't know. I suppose there are. But I have been convinced that there is something greater in all of the sadness if we will just look to see it. Our sweet Callie has also awed us all with her strength. She is a fighter and we love her with all our hearts!
The neurosurgeon has four goals for her to reach by the end of the weekend. They are these:
1. To be able to remove her C Collar. {I forgot to mention that she has been moving her head from sided to side and lifting it slightly!}
2. For the hole that is allowing fluids to drain to heal.
3. For her eyes to dilate.
4. To be able to remove the respirator! {The respirator is only having to do 10 of her respirations every minute!}
These are the specific things we are praying will happen within the next few days. Thank you so much! My parents keep reminding me to let everyone know that the faith and prayers of everyone are felt so tangibly by them and without doubt by Callie as well.
{Please leave me your email address if you would like the code for a donation button and I will do that as soon as possible.}
Thursday, September 11, 2008
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4 comments:
ashley this is january perkins i would like the code for a donation button my email address is jancan100@hotmail.com. god bless!!!!!
cavey@cox.net and that is such GREAT news! We love you all!
Of course I will put a donation button on my blog! Give me the details! I am so happy with all the wonderful progress she is making! Babies are just amazing and Callie is an extra exception to that! My email address that I use now is tonisoutham@gmail.com! Love ya Lots!
hey Send me the code. Its good to hear the doctors seem hopefull!! What a little Miracle!!
niccoombs03@gmail.com
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